Patient Education Links

American Heart Association This site includes information on preventive cardiology for children, diet and exercise guidelines, congenital heart defects, murmurs, and more.

Cove Point About congenital heart defects, interventional procedures, nutrition, and adult congenital heart disease topics.

Congenital Heart Information Network A site for families of children with congenital heart disease, and for adults with congenital heart disease.

Pediheart A site for kids with congenital heart disease, and their parents.

Adult Congenital Heart Association
International Society for Adult Congenital Cardiac Disease

Education and support for adults with congenital heart disease.

dynakids.org A site for children and adolescents with postural orthostatic tachycardia syndrome (POTS), autonomic dysfunction, and chronic fatigue.

SADS Foundation A site about long QT syndrome and other causes of sudden cardiac death in young people.Especially helpful to families who have lost a child to an arrhythmia syndrome, or who have children that have been diagnosed with long QT syndrome or another genetic arrhythmia.
QT Drugs Lists drugs to be avoided by patients with QT prolongation or long QT syndrome.
Familion About genetic testing for long QT syndrome.

National Marfan Foundation For families affected by Marfan syndrome or related connective tissue disorders.